Self-stigma in stuttering – a preliminary study using the Polish adaptation of the Stuttering Perception Scale

Czech version

Authors: Bauszek Natalia ¹; Sierska W Katarzyna ^2,3
Authors‘ workplace: Centrum Logopedyczne w Katowicach ¹; Instytut Językoznawstwa, Wydział Humanistyczny, Uniwersytet Śląski w Katowicach ²; Fundacja Centrum Logopedyczne ³
Published in: Listy klinické logopedie 2022; 6(2): 62-70
Category: Miscellaneous
doi: https://doi.org/10.36833/lkl.2022.019

Overview

The article presents the results of a pilot study using the Polish version of the Stuttering Perception Scale. The phenomenon of stigmatisation which is present in stuttering has a negative impact on the quality of life of those who stutter. The purpose of the study outlined below was to identify the opinions of those who are known as ‘double experts’ on the phenomenon of stigmatisation and self-stigmatisation in stuttering, as well as on the correctness of the Polish adaptation of the scale and its potential applicability in the therapy of adults suffering from stuttering. This qualitative study involved 7 participants: speech therapists, psychologists, and/or leaders of the self-help movement for people who stutter, who have personal experience of stuttering. The research problem took the form of the question: How do respondents assess the reliability of the translation of the scale and its usefulness in the process of Speech Therapy intervention? The article cites selected opinions of the respondents and indicates the practical implications of the study.

Keywords:

stuttering – self-stigma – adults who stutter (AWS) – Stuttering Perception Scale – preliminary study

Sources

1. ABDALLA, F.A., St. LOUIS, K.O., 2012. Arab school teachers’ knowledge, beliefs and reactions regarding stuttering. Journal of Fluency Disorders. 37(1), s. 54–69.

2. BLANCHET, P., BOROŃ, A., CHMIELEWSKi, G., EVERARD, R., GŁADOSZ, Z., HAASE, T., JANKOWSKA-SZAFARSKA, L., RAVID, B., ST. LOUIS, K.O., WĘSIERSKA K., 2020. Sukces w terapii jąkania – czym jest i jak go osiągnąć – opinie „podwójnych ekspertów“. W: K. WĘSIERSKA, M. WITKOWSKI (red.), Zaburzenia płynności mowy: teoria i praktyka. T.2, s. 13–31. Katowice: Wydawnictwo Uniwersytetu Śląskiego.

3. BOYLE, M.P., 2013. Assessment of stigma associated with stuttering: development and evaluation of the Self-Stigma of Stuttering Scale (4S). Journal of Speech, and Hearing Research. 56(6), s. 1517–1529.

4. BOYLE, M.P., 2014. Relationships between psychosocial factors and quality of life for adults who stutter. American Journal of Speech-Language Pathology. 24(1), s. 1–12.

5. BOYLE, M.P., 2015. Identifying correlates of self-stigma in adults who stutter: Further establishing the construct validity of the Self-Stigma of Stuttering Scale (4S). Journal of Fluency Disorders. 43, s. 17–27.

6. BOYLE, M.P., 2018. Enacted stigma and felt stigma experienced by adults who stutter. Journal of Communication Disorders. 73, s. 50–61.

7. BOYLE, M.P., BLOOD, G.W., 2015. Stigma and stuttering: Conceptualizations, applications, and coping. W: ST. LOUIS, K.O. (red.) Stuttering Meets Stereotype, Stigma, and Discrimination: An Overview of Attitude Research. Morgantown: West Virginia University Press, s. 43–70.

8. BOYLE, M.P., FEARON, A.N., 2018. Self-stigma and its associations with stress, physical health, and health care satisfaction in adults who stutter. Journal od Fluency Disorders. 56, s. 112–121.

9. BOYLE, M.P., MILEWSKI, K.M., BEITA-ELL, C., 2018. Disclosure of stuttering and quality of life in people who stutter. Journal od Fluency Disorders. 58, s. 1–10.

10. CHEASMAN, C., EVERARD, R., 2021. Akceptacja a jąkanie. W: K. Węsierska, H. Sønsterud (red.), Dialog bez barier – kompleksowa interwencja logopedyczna w jąkaniu, s. 159-178. Chorzów: Agere Aude.

11. CHMIELEWSKI, G., 2015. Jakość wybranych czynników psychospołecznych a skuteczność terapii osób jąkających się. W: K. WĘSIERSKA (red.), Zaburzenia płynności mowy – teoria i praktyka, 1, s. 189-206. Katowice: Komlogo – Uniwersytet Śląski.

12. CORRIGAN, P.W., LARSON, J.E., RÜSCH, N., 2009. Self-stigma and the „why try” effect: impact on life goals and evidence-based practices. World Psychiatry. 8(2), s. 75–81.

13. CORRIGAN, P.W., MICHAELS, P.J., VEGA, E., GAUSE, M., WATSON, A.C., RÜSCH, N., 2012. Self-stigma of mental illness scale-short form: reliability and validity. Psychiatry Research. 199(1), s. 65–69.

14. CORRIGAN, P.W., RAFACZ, J., RÜSCH, N., 2011. Examining a progessive model of self-stigma and its impact on people with serious mental illness. Psychiatry Research. 189(3), s. 339–343.

15. CORRIGAN, P.W., WATSON, A.C., 2002. The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice. 9(1), s. 35–53.

16. CRAIG, A., BLUMGART, E., TRAN, Y., 2009. The impact of stuttering on the quality of life in adult people who stutter. Journal of Fluency Disorders. 34(2), s. 61–71.

17. FICEK, E., JEZIORCZAK, B., WĘSIERSKA, K., 2021. Poradnictwo logopedyczne dla osób jąkających się i ich rodzin. W: K. WĘSIERSKA, H. SØNSTERUD, (red.), Dialog bez barier – kompleksowa interwencja logopedyczna w jąkaniu. Wydanie polskie rozszerzone, s. 85–115. Chorzów: Agere Aude.

18. IVERACH, L., JONES, M., O’BRIAN, S., BLOCK, S., LINCOLN, M., HARRISOn, E., et al., 2009. Screening for personality disorders among adults seeking speech treatment for stuttering. Journal of Fluency Disorders. 34(3), s. 173–186.

19. PLEXICO, L., MANNING, W., LEVITT, H., 2009a. Coping responses by adults who stutter: I. Protecting the self and others. Journal of Fluency Disorders. 34(2), s. 87–107.

20. PLEXICO, L., MANNINg, W., LEVITT, H., 2009b. Coping responses by adults who stutter: II. Approaching the problem and achieving agency. Journal of Fluency Disorders. 34(2), s. 108–126.

21. ST. LOUIS, K.O., 2015. Epidemiology of public attitudes toward stuttering. W: ST. LOUIS, K.O., (ed.), Stuttering meets stereotype, stigma, and discrimination: An overview of attitude research, s. 7–42. Morgantown: West Virginia University Press.

22. WEIDNER, M., ST. LOUIS, K.O., 2021. Zmiana społecznych postaw wobec jąkania. W: K. WĘSIERSKA, H. SØNSTERUD (red.), Dialog bez barier – kompleksowa interwencja logopedyczna w jąkaniu, s. 117–157. Chorzów: Agere Aude.

23. YARUSS, J.S., 2010. Assessing quality of life in stuttering treatment outcomes research. Journal of Fluency Disorders. 35(3), s. 190–202.